A qualitative study on psycho‑social needs of the family caregivers of persons with spinal cord injury

This study explores the psycho-social needs of family caregivers (FCGs) of persons with spinal cord injury (PwSCI) in India. It uses a qualitative approach, involving face-to-face interviews with sixteen FCGs to understand their experiences and challenges. The research identifies key themes related to the needs of these caregivers, including awareness needs (understanding the illness), resource needs (financial and practical support), and personal care needs (time for themselves and managing emotions). The findings aim to help design tailored psycho-social interventions for FCGs of PwSCI in India, emphasizing the importance of addressing their specific needs to improve their well-being and the care they provide.

• 1
  The study identified three main themes: Awareness needs, Resource needs, and Personal care needs, reflecting the key challenges faced by FCGs.
• 2
  FCGs expressed a strong desire for more information about the illness, its management, and the recovery process, highlighting the need for improved communication and education.
• 3
  Many FCGs reported financial difficulties and concerns about livelihood, emphasizing the need for resources such as pension certificates, job opportunities, and financial assistance.