Cross-sectional and prospective data-collection in North Macedonia—methodological considerations

Spinal Cord Series and Cases, 2019 · DOI: https://doi.org/10.1038/s41394-019-0204-x · Published: June 1, 2019

Spinal Cord Injury Research Methodology & Design Public Health

Simple Explanation

This study explores the difficulties in gathering data about spinal cord injuries in North Macedonia. It highlights problems with logistics, ethical considerations, and ensuring the collected data is accurate and representative of the population. Researchers found challenges in locating participants, gaining their trust, and dealing with incomplete medical records. These issues can affect how we understand the impact of SCI in the country. The research suggests ways to improve future data collection, such as better preparation regarding available records and infrastructure, building trust with participants, and being aware of cultural and linguistic barriers.

Study Duration

2015-2017

Participants

78 persons with acute and chronic traumatic spinal cord injury (SCI)

Evidence Level

Not specified

Key Findings

1
The study identified three major challenges with data collection in this setting: (1) research logistics and procedures, such as recruitment, infrastructure, and compensation, (2) ethical issues and the initial lack of mutual trust and understanding between researchers and participants, and (3) scientific quality and interpretation, including representativeness.
2
Incomplete medical records, lack of address registers, and difficulties in locating participants were significant logistical hurdles.
3
Building trust with participants was essential, as some feared losing governmental financial support or misunderstood the research purpose.

Research Summary

This study describes methodological issues, experienced challenges related to data collection in North Macedonia and to discuss possible improvements of epidemiological data collection in future studies. The study identified three major challenges with data collection in this setting: research logistics and procedures, ethical issues and the initial lack of mutual trust and understanding between researchers and participants, and scientific quality and interpretation, including representativeness. Methodological issues influenced by settings, are important to consider when interpreting study results. Healthcare systems vary between (and sometimes in) countries, language and culture may introduce barriers to understanding, and epidemiological research also rely on infrastructure and surroundings.

Practical Implications

Improve Data Collection Strategies

Future research should prioritize comprehensive medical record keeping and accessible national registers.

Enhance Ethical Considerations

Researchers must focus on building trust with participants through clear communication and addressing their concerns about potential negative consequences of participation.

Consider Contextual Factors

Acknowledging cultural and linguistic barriers is crucial for accurate data interpretation and ensuring representativeness of the study sample.

Study Limitations

1
Incomplete medical records and missing address registers.
2
Potential for recall bias due to retrospective questions.
3
Limited generalizability of study (a) due to specific inclusion criteria and challenges.

Your Feedback

Was this summary helpful?

Back to Spinal Cord Injury