Environmental and systems experiences of persons with spinal cord injury and their caregivers when transitioning from acute care to community living during the COVID-19 pandemic: a comparative case study

Spinal Cord Series and Cases, 2023 · DOI: https://doi.org/10.1038/s41394-023-00561-x · Published: February 14, 2023

Spinal Cord Injury COVID-19 Rehabilitation

Simple Explanation

This study explores the experiences of people with spinal cord injuries (SCI) and their caregivers as they move from hospital rehabilitation to living at home, especially during the COVID-19 pandemic. The research looks at how well the healthcare system supports them during this transition and whether they can easily access the services and programs they need. The study found that the transition can be difficult, with issues like poor communication, COVID-19 restrictions, and problems navigating physical spaces and community services.

Study Duration

From October 2020 to January 2021

Participants

Three dyads (six participants) of persons with spinal cord injury (PWSCI) and their caregivers

Evidence Level

Comparative case study

Key Findings

1
Dyads described transition experiences from inpatient rehabilitation to community as uncertain and unsupported.
2
Participants identified breakdowns in communication, COVID-19 restrictions, and challenges in navigating physical spaces and community services as concerns.
3
Concept mapping of programs and services showed a gap in identification of available resources and a lack of services designed for both PWSCI and their caregivers together.

Research Summary

This study examined the lived experiences of persons with spinal cord injury (PWSCI) and their caregivers transitioning from inpatient rehabilitation to the community during the COVID-19 pandemic. The study identified breakdowns in communication, challenges navigating physical spaces, and gaps in the availability and accessibility of services and programs for PWSCI and their caregivers. The findings suggest a need for improved discharge planning, enhanced caregiver engagement, and patient-centered care to facilitate a smoother transition and community reintegration for dyads.

Practical Implications

Improve Discharge Planning

Enhance communication and coordination between healthcare providers, PWSCI, and caregivers during discharge planning.

Increase Caregiver Engagement

Actively involve caregivers in the rehabilitation and discharge planning process to ensure they are well-prepared to provide support at home.

Enhance Awareness of Community Resources

Provide comprehensive information about available community services and programs for PWSCI and caregivers to facilitate access and utilization.

Study Limitations

1
The study excluded perspectives from rurally located patients.
2
The study excluded patients without a caregiver.
3
The small number of participants included in this study may limit the transferability of these findings.

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