Experiences of patients and their partners with sexual problems after spinal cord injury: A phenomenological qualitative study

The Journal of Spinal Cord Medicine, 2022 · DOI: 10.1080/10790268.2020.1798136 · Published: March 1, 2022

Spinal Cord Injury Urology Research Methodology & Design

Simple Explanation

This study explores the experiences of individuals with spinal cord injuries (SCI) and their partners regarding their sexual lives. It uses a qualitative research approach to understand the challenges and coping mechanisms they employ. The research involved in-depth interviews with both patients and their partners to gather detailed insights into how SCI affects their sexual relationships and overall well-being. The study identifies several themes related to the challenges and adjustments they face. The findings highlight that SCI significantly impacts sexual function and satisfaction, leading to various coping strategies and emotional challenges for both individuals with SCI and their partners. The study emphasizes the importance of addressing these issues in healthcare services.

Study Duration

Not specified

Participants

Seven female and six male patients with spinal cord injury and their partners

Evidence Level

Qualitative study based on Heidegger’s hermeneutic phenomenological approach

Key Findings

1
The initial reactions to SCI differ between men and women, with men primarily concerned about erectile function and women focusing on fears of abandonment and loneliness.
2
Individuals with SCI experience various sexual problems, including difficulties with erection, ejaculation, vaginal lubrication, and sensation, leading to reluctance and prolonged preparation before intercourse.
3
Coping strategies include manual stimulation, use of lubricants, pillow support for positioning, fluid restriction for incontinence, and dietary adjustments to manage intestinal gas.

Research Summary

This qualitative study investigated the sexual experiences of individuals with spinal cord injury (SCI) and their partners, revealing significant challenges and coping mechanisms. Key findings include differences in initial reactions to SCI between genders, a range of sexual problems experienced by both patients and partners, and various coping strategies employed to address these issues. The study highlights the importance of addressing sexual health and providing counseling to individuals with SCI and their partners to improve their overall well-being and relationship satisfaction.

Practical Implications

Healthcare Support

Rehabilitation teams should address sexual health concerns and provide counseling to patients and partners.

Awareness Programs

There is a need for increased awareness about the sexual needs and challenges faced by individuals with SCI in Turkey.

Coping Strategies

Educating patients about potential changes in sexuality after SCI and offering solution methods can alleviate anxiety and improve rehabilitation outcomes.

Study Limitations

1
Limited generalizability due to the small sample size inherent in qualitative studies.
2
The study's focus on a specific region in Turkey may limit the transferability of findings to other cultural contexts.
3
Reliance on self-reported data may introduce potential biases in the participants' responses.

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