Topics in Spinal Cord Injury Rehabilitation, 2019 · DOI: 10.1310/sci2504-290 · Published: October 1, 2019
Due to shorter hospital stays, family caregivers of individuals with SCI often lack sufficient time to learn necessary skills, leading to feelings of unpreparedness. This study identifies the skills needed by these caregivers to improve their ability to care for SCI patients at home. The study identified 29 specific skills grouped into six main areas, including managing physical health, addressing emotional needs, making decisions, managing time, being flexible, and navigating the healthcare system. The findings highlight the need for healthcare professionals to regularly assess caregivers' skills and for programs to be designed that include the specific skills caregivers need in real-life situations.
Develop targeted skills training programs for family caregivers of individuals with SCI, focusing on the identified caregiving processes and specific skills.
Implement regular assessments of family caregivers' skills by healthcare professionals to identify areas where they need additional support and training.
Improve the accessibility and responsiveness of the healthcare system to the needs of family caregivers, providing them with the necessary support services.