International Spinal Cord Injury Lower Urinary Tract Function Basic Data Set (version 2.0)

Spinal Cord Series and Cases, 2018 · DOI: https://doi.org/10.1038/s41394-018-0090-7 · Published: June 4, 2018

Spinal Cord Injury Urology Research Methodology & Design

Simple Explanation

This study presents a revised version of the International Spinal Cord Injury (SCI) Lower Urinary Tract (LUT) Function Basic Data Set. The aim is to standardize data collection and reporting on LUT function in SCI patients. The revised data set includes updated terminology from the International Continence Society and considerations for pediatric patients. Changes were made to variables such as bladder emptying and urinary incontinence. The updated data set is endorsed by major SCI organizations and is freely available online. It is intended to improve the comparability of research findings across different studies and clinical settings.

Study Duration

Not specified

Participants

International SCI Data Sets Committee, American Spinal Injury Association (ASIA) board, International Spinal Cord Society (ISCoS) executive and scientiﬁc committees, major organizations, and interested individuals

Evidence Level

Not specified

Key Findings

1
The revised data set adopts new terminology from the International Continence Society for adult neurogenic lower urinary tract dysfunction.
2
The revised data set provides advice for collecting information from pediatric patients for most variables.
3
The time frame for reporting involuntary urine leakage has been adjusted to 'last 4 weeks' to align with other International SCI Data Sets.

Research Summary

The International Spinal Cord Injury (SCI) Lower Urinary Tract (LUT) Function Basic Data Set (version 2.0) was revised and reviewed to incorporate new knowledge and suggestions. Revisions include adoption of new terminology by the International Continence Society, advice for collection of information from pediatric patients, and adjustments to variables such as bladder emptying and urinary incontinence. The data set is endorsed by the ASIA board and the ISCoS executive and scientiﬁc committees and is available at http://www.iscos.org.uk/international-sci-data-sets.

Practical Implications

Standardized Data Collection

The data set facilitates standardized data collection and reporting, enabling comparison of results across different studies and clinical settings.

Improved Clinical Practice

The data set provides a minimum amount of information on the LUT, aiding in daily clinical practice and patient management.

Enhanced Research

The data set enhances research by providing a consistent framework for data collection, promoting collaboration and knowledge sharing.

Study Limitations

1
The potential loss of continuity resulting from any revision was weighed against the benefits of the proposal.
2
The data set relies on self-reporting, which may introduce bias or inaccuracies in the collected information.
3
The data set focuses on basic information and may not capture the full complexity of LUT function in individuals with SCI.

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