Knowledge translation gaps that need to be bridged to enhance life for people with spinal cord injury

Spinal Cord Series and Cases, 2024 · DOI: https://doi.org/10.1038/s41394-024-00634-5 · Published: April 5, 2024

Simple Explanation

People with spinal cord injuries (SCI) need specific knowledge to cope, but often lack access to it. This need extends beyond initial care to relatives, healthcare providers, and authorities. A Swedish project identified knowledge gaps and research priorities for enhancing the lives of individuals with SCI. An online survey assessed knowledge translation gaps to determine why available knowledge isn't reaching those who need it. The study used the International Classification of Functioning, Disability and Health (ICF) to analyze these knowledge gaps and identify who needs the information. This framework helps understand functioning, disability, and health conditions.

Study Duration

2021-2022

Participants

242 persons with SCI, relatives, and health professionals

Evidence Level

Not specified

Key Findings

1
A significant portion of knowledge gaps (46%) couldn't be classified by specific ICF components, indicating a need for a holistic understanding of living with SCI.
2
Health professionals outside specialized SCI units, authorities, and decision-makers are key groups that need better access to knowledge about SCI.
3
The study identified gaps in the ICF core sets for SCI, such as the experience of self and time functions, autonomic dysreflexia and incomplete SCI, which are important for psychosocial rehabilitation.

Research Summary

This study identifies knowledge translation gaps affecting people with spinal cord injury (SCI) by analyzing responses from an online survey and a priority setting partnership. It emphasizes the importance of addressing these gaps to improve the lives of those with SCI. The International Classification of Functioning, Disability and Health (ICF) framework was used to categorize the identified knowledge gaps. The study reveals that a significant portion of these gaps relate to the holistic aspects of living with SCI. The findings highlight the need for better knowledge dissemination to healthcare professionals outside specialized SCI units, as well as to authorities and decision-makers, to ensure comprehensive support and community integration for individuals with SCI.

Practical Implications

Improved Knowledge Dissemination

Develop targeted educational programs for healthcare professionals outside of SCI units.

Policy and Awareness Initiatives

Educate authorities and decision-makers about the realities of living with SCI to improve support and integration.

Holistic Care Approaches

Promote a holistic understanding of SCI that addresses not only physical but also psychological and social well-being.

Study Limitations

1
The survey did not specify when the knowledge is needed (acute, rehabilitation, or later phases).
2
Some knowledge translation gaps were non-specific, possibly resulting from the survey's particular nature.
3
The study's focus on the Swedish context may limit the generalizability of the findings to other countries.

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