NON-ADHERENCE TO FOLLOW-UP CARE IN PERSONS WITH SPINAL CORD INJURY WITHIN 10 YEARS AFTER INITIAL REHABILITATION

Journal of Rehabilitation Medicine, 2024 · DOI: 10.2340/jrm.v56.41083 · Published: August 26, 2024

Spinal Cord Injury Healthcare Rehabilitation

Simple Explanation

Regular follow-up appointments are crucial for individuals with spinal cord injuries for monitoring health and preventing complications. However, many individuals fail to adhere to recommended care. This study examined non-adherence to follow-up appointments within 10 years post-injury and identified risk factors. The study underscores the importance of understanding barriers to receiving recommended care for persons with spinal cord injury. Identifying high-risk groups is crucial for developing strategies to improve adherence and enhance long-term outcomes in this population.

Study Duration

10 Years

Participants

225 patients admitted to a specialized spinal cord injury centre in Switzerland

Evidence Level

Retrospective single-centre cohort study

Key Findings

1
36% of patients were adherent to annual follow-up appointments; 2% formally transferred to another SCI centre; 44% were non-adherent for general reasons (patient’s will to discontinue care [12%] or unknown reasons [32%]); and 18% were non-adherent due to death.
2
Risk factors for non-adherence included older age, lack of long-term partner, and more than 2 h of travel time to the clinic.
3
In the youngest age group (18–30 years), 55% were non-adherent after 10 years.

Research Summary

The present study aimed to investigate the prevalence and time pattern of non-adherence to follow-up care in persons with SCI and explore its associated risk factors. The prevalence of non-adherence to follow-up care in persons with SCI was substantial, raising concerns about the effectiveness of healthcare management. Our findings highlight the complex interplay of factors that contribute to attrition rates in this population and underscore the significance of addressing these determinants to enhance patient engagement and continuity of care.

Practical Implications

Telemedicine and Support Networks

A holistic approach to patient engagement integrating solutions such as telemedicine and involvement of support networks could reduce the risk of non-adherence.

Tailored Strategies

Healthcare providers should implement tailored strategies to address older patients’ unique challenges, promoting better follow-up adherence.

Understanding Healthcare Needs

Understanding the healthcare needs in different age groups therefore should be not only a research topic, but also a clinical concern to assure better adherence to follow-up care.