Protocol for developing a healthcare transition intervention for young people with spinal cord injuries using a participatory action research approach

This study focuses on developing a healthcare transition (HCT) intervention for young people with spinal cord injuries (SCI) as they move from pediatric to adult healthcare. The research will involve young people with SCI and their parents/caregivers in the process of creating, implementing, and evaluating the intervention. The study uses a participatory action research (PAR) approach, which means the young people and their families will be active participants in the research process.

• 1
  The study is the first to use a participatory action research approach to co-create and evaluate a healthcare transition support intervention for youth with spinal cord injuries.
• 2
  Using PAR methodology will give a voice to a group of young people whose voices have historically been ignored.
• 3
  Clear articulation of the methods of the study will provide guidance on the use of PAR in the development of HCT interventions.