BMC Neurology, 2019 · DOI: https://doi.org/10.1186/s12883-019-1347-x · Published: June 13, 2019
This study explores the challenges faced by individuals with spinal cord injuries (SCI) and their family caregivers in maintaining their relationships after the injury. It identifies factors that contribute to relationship deterioration and strategies used to rebuild and maintain these relationships. The research focuses on understanding the experiences of both the individuals with SCI and their caregivers, including spouses and parents, and the coping mechanisms they employ to adjust to their new lives post-injury. The findings highlight the need for healthcare professionals and support groups to provide education, training, and counseling to assist individuals with SCI and their families in adapting to their new lives and strengthening their relationships.
Healthcare professionals should be trained to provide relationship-based education and communication skills training to dyads living with SCI.
Counseling services during rehabilitation can better prepare individuals with SCI and their family caregivers for the challenges they may face post-discharge.
Connecting family caregivers with peer support groups can reduce feelings of loneliness, social isolation, and psychological distress, fostering a more supportive environment.