Responsiveness of the International Spinal Cord Injury Quality of Life Basic Data Set V2.0: An international longitudinal study

This study examines how well a specific questionnaire, the International Spinal Cord Injury Quality of Life Basic Data Set V2.0 (QoL-BDS V2.0), can detect changes in the quality of life for people with spinal cord injuries or diseases during their first year after injury. The study involved participants from multiple countries and assessed their satisfaction with life, physical health, psychological health, and social life, alongside their mobility and any secondary health conditions they experienced. By comparing the questionnaire results at the start of rehabilitation and after one year, the researchers aimed to see if the questionnaire could accurately reflect improvements or changes in the participants' quality of life.

• 1
  Scores on ‘life as a whole’, ‘physical health’ and the total scale were significantly higher at follow-up compared to baseline in the total sample and the SCD subgroup, but not in the SCI subgroup.
• 2
  Increases in ‘physical health’, ‘psychological health’, ‘social life’ and the total score were significantly associated with improvements in the SCI-SCS or mobility scores.
• 3
  Participants with improved SCI-SCS and mobility at follow-up showed significantly more improvement in satisfaction with social life and the total score compared to participants without such favorable changes.