Support service utilization and out-of-pocket payments for health services in a population-based sample of adults with neurological conditions

PLoS ONE, 2018 · DOI: https://doi.org/10.1371/journal.pone.0192911 · Published: February 23, 2018

Simple Explanation

This study looks at how people in Canada with neurological conditions use support services and pay for healthcare. It compares different conditions like stroke, Parkinson's, Alzheimer's, traumatic brain injury, spinal cord injury, and multiple sclerosis. The study found that people with neurological conditions rely more on informal support (from family and friends) than formal support (from paid workers or volunteers). This reliance on informal support can put a strain on caregivers. Stroke survivors seem to receive less support than people with other neurological conditions, while those with Alzheimer's/dementia receive the most. Also, people with stroke are more likely to pay out-of-pocket for rehabilitation therapy.

Study Duration

Not specified

Participants

2,410 respondents, estimated 459,770 when sample weights were used

Evidence Level

Not specified

Key Findings

1
Canadians with neurological conditions receive more informal assistance than formal assistance.
2
Stroke survivors receive less support services compared to individuals with other adult neurological conditions.
3
People with stroke are more likely to make out-of-pocket payments for rehabilitation therapy than those with other neurological conditions.

Research Summary

The study examined support service utilization and out-of-pocket healthcare payments among Canadians with neurological conditions. It found that informal support is more prevalent than formal support, potentially impacting caregiver health. Stroke survivors reported the lowest proportion of formal support use, suggesting potential unmet needs or barriers to access.

Practical Implications

Informing Support Service Development

The data can inform the development of more effective and targeted support services in the community for individuals with neurological conditions.

Addressing Caregiver Burden

Recognizing the heavy reliance on informal support highlights the need for interventions and policies to alleviate caregiver burden and provide respite care options.

Improving Access to Rehabilitation

The finding that stroke survivors are more likely to pay out-of-pocket for rehabilitation suggests a need for improved insurance coverage and access to affordable rehabilitation services.

Study Limitations

1
Data were self-reported, potentially introducing bias.
2
The study only included people living in private households.
3
The survey did not capture the amount of support received, only its presence or absence.

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