The International Spinal Cord Injury Pediatric Activity and Participation Basic Data Set

The study developed a standardized way to collect information about activities and participation in children with spinal cord injuries. This helps compare injuries, treatments, and outcomes across different centers and countries. The data set includes 13 variables, such as mobility, dressing, communication, and participation in activities like family outings and sports. It is designed for children aged 6 to 17 who have been discharged from initial rehabilitation for at least 3 months. The data set can be used through interviews or self-reporting, with the understanding that children 8 years and older can typically self-report, while younger children may require parent or caregiver input.

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  The International SCI Pediatric A&P Basic Data Set includes 13 variables across three domains: ADLs, participation, and physical activities.
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  The data set is designed for children between 6 and 17 years old with traumatic or nontraumatic acquired SCI, who have been discharged from initial hospitalization/rehabilitation for at least 3 months.
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  The ADL variables in the data set record information about independence in mobility, dressing, feeding, and toileting, using descriptions and coding metrics adapted from the SCIM-III SR-Y.