Women’s health guidelines for the care of people with spina biﬁda

Journal of Pediatric Rehabilitation Medicine, 2020 · DOI: 10.3233/PRM-200757 · Published: January 1, 2020

Simple Explanation

Women and girls with spina biﬁda have specific health care concerns, especially regarding puberty, sexuality, pregnancy, childbirth, and menopause. These guidelines aim to provide information to help them make healthy choices throughout their lifespan. Girls with spina biﬁda may experience early puberty and require support during this process. Women with spina biﬁda might have unique reproductive health concerns, such as structural anomalies. Positioning during pelvic examinations and birth may require special attention due to changes in the hips and spine. Menopause can cause symptoms and changes in vaginal and bladder health, suggesting that women may benefit from lifestyle and medical management. Health screening programs are important for all individuals.

Study Duration

Not specified

Participants

Not specified

Evidence Level

Clinical consensus

Key Findings

1
Girls with spina biﬁda are more likely to go through puberty early and need support during this process.
2
Women with spina biﬁda may benefit from consultation with an obstetrician experienced with high-risk pregnancies, to discuss neural tube defect risks and increased risk of preterm birth.
3
Women with decreased pelvic sensation may find that other parts of the body, especially the lips and nipples, as well as arms, earlobes or other areas of the skin are more sensitive

Research Summary

This article addresses key aspects of health pertinent to girls and women with spina biﬁda and outlines the SB Women’s Health Guidelines for the Care of People with Spina Biﬁda. The goals of the Women’s Health Guidelines were both practical and aspirational, aiming to provide accurate information, maximize sexual functioning, and understand menopause management options. The development of this guideline utilized an international expert team and systematic review of the literature and recommendations were based on expert consensus when evidence was limited.

Practical Implications

Improved Healthcare Access

Ensuring women with spina bifida have access to accessible gynecology exam rooms and tables.

Enhanced Preconception Counseling

Recommending preconception consultation with specialists to discuss the impact of pregnancy on health.

Individualized Pregnancy Care

Tailoring pregnancy care based on the specific ways each woman is affected by spina bifida, considering pulmonary function, mobility, and bowel and bladder function.

Study Limitations

1
Limited data in the field of health of women with spina biﬁda.
2
Lack of information on the effect of pregnancy on future continence.
3
Need for more data to understand the incidence and risk factors for preterm birth in those with spina biﬁda.

Your Feedback

Was this summary helpful?

Back to Neurology