Bone health education in individuals with spinal cord injury or disease—the Bare Bones Podcast Series: plan it, produce it, post it!

Front. Rehabil. Sci., 2024 · DOI: 10.3389/fresc.2024.1340881 · Published: July 16, 2024

Spinal Cord Injury Patient Experience Musculoskeletal Medicine

Simple Explanation

This project created a podcast series called the “Bare Bones Podcast Series” to help people with Spinal Cord Injury or Disease (SCI/D) understand bone health guidelines and how to reduce their risk of fractures. The podcast episodes and related handouts were designed with the help of people with lived experience (PLEX), ensuring the information is relevant and easy to understand. The goal is to empower individuals with SCI/D to advocate for their bone health and have informed discussions with their healthcare providers.

Study Duration

Not specified

Participants

3 PLEX-P, 22 PLEX-R, 11 CSCM-CPG expert panel members

Evidence Level

Not specified

Key Findings

1
Nine podcast episodes and related Educational Action Planning Tools (EATs) were co-developed with PLEX partners, reviewers, and expert panel members.
2
Feedback from PLEX reviewers led to revisions in the podcast content and EATs to improve clarity, format, and cultural-linguistic acceptability.
3
The Bare Bones Podcast Series was disseminated through a project website and promoted at scientific conferences and via social media.

Research Summary

The project successfully co-developed and disseminated a series of nine educational podcasts and related EATs, titled “The Bare Bones Podcast Series,” to educate individuals with SCI/D about bone health and fracture prevention. The podcast episodes and EATs were created collaboratively with PLEX partners, local PLEX reviewers, and members of the CSCM-CPG Expert Panel, ensuring relevance and usability. The Bare Bones Podcast Series aims to empower PLEX, their family caregivers, and healthcare providers to advocate for ongoing bone health screening and promote dialogue about fracture prevention.

Practical Implications

Improved Patient Education

The podcast series and EATs provide accessible and understandable information about bone health for individuals with SCI/D.

Enhanced Shared Decision-Making

The materials empower patients to have informed discussions with their healthcare providers regarding bone health and fracture prevention.

Proactive Bone Health Management

The project encourages a proactive approach to bone health among individuals with SCI/D, potentially reducing fracture-related morbidity and mortality.

Study Limitations

1
The number of PLEX-R was small and from one region, limiting generalizability.
2
PLEX-R had chronic SCI/D, which may not reflect the thoughts of newly injured patients.
3
More comments were received on EATs than podcast episodes during focus group meetings, possibly biasing reviewers.

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