Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 1-10 of 132 results
The Journal of Spinal Cord Medicine, 2023 • January 1, 2023
This study examined the use of MHV among Veterans with SCI/D, finding limited registration and use of key portal features. Several factors were identified as being associated with both increased and d...
KEY FINDING: Only 14.6% of Veterans with SCI/D in the sample registered for MHV, and among those, 48.7% used the medication refill feature.
PM R, 2023 • September 1, 2023
The study assessed patient favorability toward music therapy (MT) in an inpatient rehabilitation facility (IRF) across three impairment categories, finding that patients generally have a neutral to fa...
KEY FINDING: Most patients (79.8%) scored in either the favorable or neutral ranges regarding music therapy.
The Journal of Spinal Cord Medicine, 2024 • May 1, 2024
The study evaluated the effectiveness of SCI Thrive, a peer-led online self-management program, for individuals with spinal cord injury (SCI). Results indicated that while there were no significant di...
KEY FINDING: The treatment group had significantly higher scores on CHART occupational subscale (P = .022), but no other differences were found at the end of 6 weeks.
Journal of NeuroEngineering and Rehabilitation, 2023 • March 30, 2023
This systematic review assessed user satisfaction with overground gait exoskeletons in individuals with neurological pathologies such as stroke, spinal cord injury (SCI), and multiple sclerosis (MS). ...
KEY FINDING: Users generally reported positive satisfaction with overground exoskeletons in terms of safety, efficacy, and comfort.
PLOS ONE, 2023 • April 20, 2023
This scoping review aimed to identify and summarize existing literature on medication self-management interventions for adults with traumatic SCI. The review identified only three relevant studies, hi...
KEY FINDING: There is a lack of literature on medication self-management interventions specifically designed for adults with traumatic SCI.
Journal of Patient-Reported Outcomes, 2023 • January 1, 2023
The study evaluated the feasibility of administering PROMIS measures using computerized adaptive testing (CAT) via tablets in an inpatient rehabilitation setting. Results showed that PROMIS assessment...
KEY FINDING: PROMIS assessment using CAT is feasible in inpatient rehabilitation with research staff assistance.
Journal of Patient-Reported Outcomes, 2023 • January 4, 2023
This report provides data to support the reliability and validity of scores on several HRQOL measures from the TBI-CareQOL measurement system (which was developed specifically for use in caregivers of...
KEY FINDING: Findings support the internal consistency reliability (all alphas > 0.70 with the vast majority being > 0.80 across the different cohorts) of the TBI-CareQOL measures.
Spinal Cord, 2023 • June 30, 2023
This systematic review aimed to summarize existing evidence on health literacy (HL) in individuals with spinal cord injury (SCI). The review analyzed five studies meeting inclusion criteria. The revie...
KEY FINDING: Health literacy levels varied among SCI patients: some studies reported reasonable or adequate HL, while others found inadequate HL.
OTJR: Occupational Therapy Journal of Research, 2024 • January 1, 2024
Since the 1980s, survivorship for persons with spinal cord injury/disease (SCI/D) has significantly improved; however, life expectancy remains lower than the general population due to secondary health...
KEY FINDING: Participants indicated barriers to SM include transportation/distance, presence of SHCs, and a lack of local resources.
The Journal of Spinal Cord Medicine, 2024 • January 1, 2024
This study evaluated a community-based self-management program for adults with SCI in Singapore, focusing on self-efficacy, secondary conditions, community integration, and employment. The program sho...
KEY FINDING: Self-efficacy scores significantly increased from baseline to post-intervention with a large effect size (Hedge’s g = 0.89).