Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient Rehabilitation

Frontiers in Rehabilitation Sciences, 2022 · DOI: 10.3389/fresc.2022.904716 · Published: May 31, 2022

Spinal Cord Injury Patient Experience Rehabilitation

Simple Explanation

This study explores the experiences of individuals with spinal cord injuries (SCI) as they transition from initial hospital care to inpatient rehabilitation. It focuses on their perceptions of care, communication, and empowerment during this critical period. The research highlights the importance of enhancing education about SCI care, promoting positive communication between patients and healthcare providers, and improving access to navigation and support services within the hospital setting. The study found that patients' sense of empowerment, effective communication, and the ability to navigate care supports significantly influenced their motivation for rehabilitation and their readiness for discharge back into the community.

Study Duration

March-June 2021

Participants

10 participants living with SCI in Alberta, Canada

Evidence Level

Not specified

Key Findings

1
The interplay between empowerment and disempowerment emerged as the core theme, permeating participants’ meanings and perceptions, influencing their rehabilitation journey.
2
Participants expressed a strong desire to enhance their functional independence and preparedness for discharge, often needing to advocate for appropriate information and resources.
3
Effective communication with care providers, characterized by empathy and optimism, positively influenced participants’ motivation and perceived readiness for discharge.

Research Summary

This study investigates the experiences of individuals with SCI during their transition from acute hospital care to inpatient rehabilitation, focusing on empowerment, communication, and navigating care supports. The research identifies a core theme of interplay between empowerment and disempowerment, highlighting the need for patients to feel self-empowered for recovery despite perceived limitations within the healthcare system. The study concludes that enhancing education of person/family-centered SCI care, fostering positive communication, and facilitating access to community supports are essential for improving the patient experience and community re-integration.

Practical Implications

Enhance SCI Education

Improve education for patients and families on SCI self-management and available resources early in the care process.

Foster Positive Communication

Promote empathetic and optimistic communication between healthcare providers and patients to build trust and motivation.

Improve Access to Navigation Support

Facilitate access to community resources, peer support, and financial assistance to support patients' transition back to the community.

Study Limitations

1
Recall bias due to participants being eligible up to 10 years post-injury
2
Limited interpretations of findings to the female experience due to the majority of participants being male
3
Potential influence on perceptions of care due to three participants receiving initial care outside of the province

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