Exploring and prioritizing content to include in a medication self-management toolkit for persons with spinal cord injury/dysfunction: A concept mapping approach

This study aimed to determine what content should be included in a medication self-management resource, or toolkit, for adults with spinal cord injury or dysfunction (SCI/D). The study also explored how this toolkit content should be delivered. The researchers used a concept mapping study, involving brainstorming, sorting, rating, and mapping to gather ideas. Participants included adults with SCI/D, caregivers, healthcare providers, and representatives from community organizations. The study identified eight key areas for the toolkit: information sharing and communication, healthcare provider interactions, peer connections, accessing medications, non-prescription medications, safety considerations, general medication information, and practical strategies.

• 1
  The final concept map included eight clusters, each representing a key content area for the medication self-management toolkit.
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  Participants rated 'safety and lifestyle considerations' as the most important and realistic area to include in the toolkit.
• 3
  There were visual differences in the importance ratings based on participant type (adults with SCI/D, caregivers, healthcare providers), and race, highlighting the need for a tailored approach.