Patient perception of spinal cord injury through social media: An analysis of 703 Instagram and 117 Twitter posts

Journal of Craniovertebral Junction and Spine, 2023 · DOI: 10.4103/jcvjs.jcvjs_87_23 · Published: September 18, 2023

Spinal Cord Injury Patient Experience Telehealth & Digital Health

Simple Explanation

This study explores how people with spinal cord injuries (SCI) use social media platforms like Instagram and Twitter to share their experiences. The research analyzed posts using specific hashtags related to SCI to identify common themes in patient experiences, such as positivity, wheelchair visibility, and rehabilitation. The study aims to understand how social media can serve as a support system for individuals living with SCI and how healthcare providers can use this information to better assist their patients.

Study Duration

January 2020 to April 2021

Participants

703 Instagram posts and 117 Twitter posts from SCI patients

Evidence Level

Not specified

Key Findings

1
The most common theme on Instagram was spreading positivity, while on Twitter, it was the appearance of a wheelchair.
2
Other frequent themes on Instagram included the appearance of a wheelchair, recovery or rehabilitation, and life satisfaction.
3
Common themes on Twitter included spreading positivity and recovery or rehabilitation.

Research Summary

This study analyzed Twitter and Instagram usage by patients with SCI to identify major themes expressed by patients regarding their experience. Patients most often shared images of their wheelchairs and spread positivity through Instagram and Twitter. Social media platforms facilitate the spread of positivity and provide additional avenues of support for patients to share their experiences involving SCI.

Practical Implications

Social Media as Support

Social media serves as an effective platform for SCI patients to gain support and advice, supplementing traditional medical advice.

Improved Understanding

Patient collaboration through social media can facilitate a better understanding of injuries, procedures, and rehabilitation processes.

Informed Healthcare

Healthcare providers and educators can utilize social media outlets to provide patients with accurate and relevant information regarding SCI.

Study Limitations

1
Subjective coding of Twitter and Instagram posts.
2
Differences in caption length between Twitter and Instagram may cause differences in content discussed.
3
Selection bias present on the population willing to post about their SCI and their recovery process.

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