Perspectives of people with spinal cord injury on a pain education resource

This study evaluates an educational resource called SeePain, designed to help individuals with spinal cord injury (SCI) manage their neuropathic pain. Neuropathic pain is a common and challenging complication after SCI. The SeePain resource was developed based on scientific literature and interviews with people with SCI, their families, and healthcare providers. It provides information about different types of pain, how pain works, and ways to manage it. The study found that participants generally found the SeePain resource to be clear, useful, and relevant. This suggests that it could be a valuable tool for improving communication about pain and empowering patients to better manage their condition.

• 1
  Participants reported high levels of agreement with the overall comprehensibility and clarity of the SeePain resource, finding the language understandable and the figures and tables clear.
• 2
  The modules discussing SCI-related pain and self-management of pain were rated as the most useful by the participants.
• 3
  Individuals with higher education were more likely to prefer electronic and website formats of the SeePain, while females and younger individuals placed greater emphasis on the clarity of the resource.