Participation Research
Browse the latest research summaries in the field of participation for spinal cord injury patients and caregivers.
Showing 171-180 of 217 results
The validation of the Dutch SF-Qualiveen, a questionnaire on urinary-specific quality of life, in spinal cord injury patients
BMC Urology, 2017 • September 13, 2017
This study validates the Dutch SF-Qualiveen questionnaire for assessing urinary-specific quality of life in spinal cord injury (SCI) patients, addressing the gap of validated measures in the Netherlan...
KEY FINDING: The Dutch SF-Qualiveen demonstrated good content validity, with SCI patients confirming that it covered their bladder problems effectively.
Study protocol: patient reported outcomes for bladder management strategies in spinal cord injury
BMC Urology, 2017 • October 2, 2017
This multi-institutional prospective cohort study aims to compare patient-reported outcomes related to different bladder management methods (CIC, IDC, and reconstructive surgery) in adult patients wit...
KEY FINDING: The primary aim of the study is to determine baseline patient-reported QoL with three different bladder management strategies (CIC, IDC, and surgery) in SCI.
A Community Perspective on Bowel Management and Quality of Life after Spinal Cord Injury: The Influence of Autonomic Dysreflexia
JOURNAL OF NEUROTRAUMA, 2018 • May 1, 2018
This study investigated the impact of bowel management and autonomic dysreflexia (AD) on the quality of life (QoL) in individuals with spinal cord injury (SCI). The online community survey of 287 indi...
KEY FINDING: Bowel management is a significant problem for many individuals with SCI, interfering with personal relationships, social life, and the ability to work or travel.
Health status of regularly physically active persons with spinal cord injury
Spinal Cord Series and Cases, 2017 • October 17, 2017
This study investigated the health status of individuals with spinal cord injury (SCI) who exercise regularly, focusing on body composition, bone mineral density, lung function, cardiorespiratory fitn...
KEY FINDING: Persons with SCI who exercise regularly following the Canadian guidelines responded with rather positive associations for health outcomes.
Pre- and Postintervention Factor Structure of Functional Independence Measure in Patients with Spinal Cord Injury
Rehabilitation Research and Practice, 2017 • December 21, 2017
This study evaluated the factor structure of the Functional Independence Measure (FIM) in 155 patients with spinal cord injury (SCI) before and after multidisciplinary inpatient rehabilitation. The ex...
KEY FINDING: The FIM scale is not unidimensional in SCI patients, instead demonstrating a 3-factor structure.
Functional Recovery Following the Transplantation of Olfactory Ensheathing Cells in Rat Spinal Cord Injury Model
Asian Spine J, 2018 • December 1, 2018
This study investigates the therapeutic potential of olfactory ensheathing cell (OEC) transplantation in a rat model of spinal cord injury (SCI). OECs were cultured, characterized, and transplanted at...
KEY FINDING: Cultured olfactory ensheathing cells expressed markers for OECs (p75NTR), olfactory nerve fibroblasts (anti-fibronectin), Schwann cells (S100β), and astrocytes (GFAP).
Lack of knowledge and training are the major obstacles in application of the Spinal Cord Independence Measure (SCIM) in China
The Journal of Spinal Cord Medicine, 2019 • July 1, 2019
The study reveals that functional outcome measurement is acknowledged by Chinese physicians, but SCIM use is limited. Lack of knowledge and training significantly impede the application of SCIM in cli...
KEY FINDING: A significant number of physicians perform functional outcome measurements, but awareness and utilization of SCIM are low.
Spiritual well-being and quality of life in patients with spinal cord injury: A study from Iran
The Journal of Spinal Cord Medicine, 2018 • January 1, 2018
The study aimed to investigate the relationship between spiritual well-being and quality of life (QOL) among patients with spinal cord injury (SCI) in Iran. The results indicated that religious well-b...
KEY FINDING: Religious well-being was found to be a significant contributing factor to improved vitality, social functioning, mental health and role emotional.
What determines low satisfaction with life in individuals with spinal cord injury?
The Journal of Spinal Cord Medicine, 2019 • January 1, 2019
This study aimed to identify variables independently associated with satisfaction with life (SWL) in individuals with spinal cord injury (SCI). It hypothesized that low levels of social support, incr...
KEY FINDING: Experiencing pain significantly increases the odds of low satisfaction with life in individuals with SCI.
Preferences of adults with spinal cord injury for widely used health-related quality of life and subjective well-being measures
The Journal of Spinal Cord Medicine, 2019 • May 1, 2019
This study examined preferences of adults with spinal cord injury for widely used HRQOL and SWB instruments in two small samples in the US (N = 10) and the UK (N = 10). The participants who rated surv...
KEY FINDING: Participants in both the US and the UK identified the Fatigue Severity Scale (FSS) as particularly important for their medical providers to know about.