Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 121-130 of 132 results
J Wound Ostomy Continence Nurs, 2016 • September 1, 2016
The purpose of this study was to evaluate the feasibility of a new web-based intermittent catheter self-management intervention. Several catheter practices improved somewhat over three months includin...
KEY FINDING: Catheter practices improved, with more frequent catheterizations every 4–6 hours.
The Journal of Spinal Cord Medicine, 2011 • July 1, 2011
This study investigated the use of on-demand video to provide patient education on spinal cord injury (SCI). The study compared the effectiveness of in-person SCI forums to online streaming videos of ...
KEY FINDING: Online video is an accessible, effective, and well-accepted way to present ongoing SCI education.
BMJ Open, 2018 • January 15, 2018
This multicentre controlled trial evaluates the effectiveness and implementation of Family Group Conferences (FGC) in rehabilitation medicine to improve future treatment. The study focuses on patient,...
KEY FINDING: The study aims to examine if optimizing decision-making during Family Group Conferences (FGCs) increases empowerment in both the patient and their significant other.
Spinal Cord Series and Cases, 2019 • July 9, 2019
This study used a survey to assess the value people with tetraplegia place on potential benefits and risks of an implanted neuroprosthetic device (NNP) for upper extremity function. The results indica...
KEY FINDING: More than 70% of participants rated improvements in arm/hand function as “very important” to regain.
Comput Inform Nurs, 2015 • November 1, 2015
This paper reports on the development of a web-based self-management intervention for intermittent urinary catheter users with spinal cord injury and the pretesting with four adults with spinal cord i...
KEY FINDING: The pre-testing participants provided valuable feedback that led to improvements in the website's content, interactivity, and usability.
Spinal Cord, 2011 • January 1, 2011
This study investigated patient preferences for neural prostheses (NPs) to restore bladder function in individuals with spinal cord injury (SCI) using choice-based conjoint (CBC) analysis. The results...
KEY FINDING: Side effects were the most important factor influencing patient choices, followed by the effectiveness of the NP on continence and voiding.
The Journal of Spinal Cord Medicine, 2012 • January 1, 2012
The aim of this project was to pilot the development of an online patient education resource. This involved the design both of the online courses themselves and of the process used to develop them. Fo...
KEY FINDING: Five courses were created, each featuring more than 45 minutes of video content and hundreds of media assets. Preliminary evaluation results indicate that users were satisfied by the courses and perceived them to be effective.
Curr Opin Neurol., 2016 • December 1, 2016
Motivation, sense of responsibility and confidence to practice and exercise in the home can be trained to increase adherence to skills practice and exercise both during and after formal rehabilitation...
KEY FINDING: Persons who need inpatient stroke rehabilitation do little walking 6-12 months later.
BMC Health Services Research, 2018 • March 8, 2018
This qualitative study explored the communication and information needs of 65 major trauma patients over three years post-injury, revealing significant challenges in accessing, using, and understandin...
KEY FINDING: Many patients experienced barriers to communication with health professionals across different care settings, including hospitals, rehabilitation facilities, and the community.
Top Spinal Cord Inj Rehabil, 2016 • July 1, 2016
The study examined perceptions of shared decision making (SDM) among individuals with spinal cord injuries/disorders (SCI/D) and the influence of demographics, health, and SCI/D characteristics on the...
KEY FINDING: Individuals with tetraplegia reported better effectiveness scores compared to those with paraplegia, suggesting they perceive the decision-making process as more aligned with their needs.