Patient Experience Research

KEY FINDING: Higher health literacy was associated with better mobility, less anxiety, and better overall health.

KEY FINDING: Greater patient participation in nursing activities is associated with better outcomes, suggesting nurses should encourage active involvement.

KEY FINDING: Rehabilitation programs in Japan primarily focus on improving physical functions for daily living activities (ADLs) but often lack comprehensive health education.

KEY FINDING: Physical and emotional support from caregivers significantly contribute to the well-being and self-management of individuals with traumatic SCI.

KEY FINDING: Most patients prefer to receive their prognosis from a physician, specifically a surgeon or physiatrist.

KEY FINDING: Most spinal cord injury survivors were unsatisfied with knowledge and emotional support provided by rehabilitation physicians.

KEY FINDING: Participants discussed challenges with taking photographs, but they enjoyed participating, appreciated inclusion, and hoped the information they provided would help others with disabilities.

KEY FINDING: The culinary coaching (CC) training program significantly improved coaches’ attitudes about delivering CC from pre-program means of 3.61 to post-program means, 3.77 (p<0.01).

KEY FINDING: A majority of SCI specialists (61.8%) reported routinely communicating with GPs, but most (53.4%) rated the communication as only “fair”.

KEY FINDING: Physicians demonstrated interruptive behaviors more often than patient-centered behaviors.