Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 91-100 of 132 results
J Appl Meas, 2010 • January 1, 2010
This manuscript focuses on a detailed methodology of empiricizing qualitative data for practical application, in the context of developing targeted, rehabilitation-specific PRO measures within a large...
KEY FINDING: Qualitative analyses can be employed to enhance the content validity and ultimately the clinical sensitivity of a scale.
The Journal of Spinal Cord Medicine, 2011 • January 1, 2011
This qualitative study assessed the perception of care by patients with spinal cord injury (SCI) to determine whether an integrated and personalized care pathway could be effective both in hospital an...
KEY FINDING: Patients valued a familiar, less clinical environment for rehabilitation, expecting active involvement in their care rather than passive treatment.
Arch Phys Med Rehabil, 2011 • October 1, 2011
This article discusses the involvement of rehabilitation stakeholders in developing PROMIS, a National Institutes of Health-funded initiative for patient-reported outcomes. PROMIS uses various methods...
KEY FINDING: Focus groups revealed that the most relevant aspect of pain, fatigue, and physical limitations was their interference with the ability to function.
The Journal of Spinal Cord Medicine, 2017 • November 2, 2017
This study used the Theoretical Domains Framework (TDF) to determine the implementation considerations for a targeted self-management program for individuals with spinal cord injury (SCI) from the per...
KEY FINDING: All 14 theoretical domains of the TDF were identified as important considerations for a self-management program for individuals with SCI.
The Journal of Spinal Cord Medicine, 2019 • May 1, 2019
This study evaluated the impact of redesigned self-management education classes on patient engagement during inpatient rehabilitation for individuals with spinal cord injury (SCI). Conventional nurse-...
KEY FINDING: Significantly higher average positive engagement responses were observed in the revised peer-led classes compared to conventional nurse-led classes.
The Journal of Spinal Cord Medicine, 2019 • May 1, 2019
This study examined preferences of adults with spinal cord injury for widely used HRQOL and SWB instruments in two small samples in the US (N = 10) and the UK (N = 10). The participants who rated surv...
KEY FINDING: Participants in both the US and the UK identified the Fatigue Severity Scale (FSS) as particularly important for their medical providers to know about.
Spinal Cord, 2018 • May 25, 2018
This systematic review examined the use of theory and the quality of reporting in self-management interventions for skin care in people with spinal cord injuries (SCI). The review found that the use o...
KEY FINDING: Only 35% of the reviewed interventions reported using a theoretical basis for their design.
The Journal of Spinal Cord Medicine, 2019 • September 1, 2019
This study evaluated the use of tablet computers, online content management platform, and video conferencing for delivery of a peer-supported, spinal cord injury self-management intervention. The stud...
KEY FINDING: Participants were receptive and satisfied with the iPad and iTunes U platform and the video chat experience.
Top Spinal Cord Inj Rehabil, 2018 • May 3, 2018
This study investigated the experiences of people with spinal cord injury (SCI) in navigating and managing health information within their communities. It highlighted that while individuals receive su...
KEY FINDING: People living with SCI use multiple sources of information, including health professionals, peer support networks, and the Internet, to prevent and manage secondary conditions.
Health Psychol, 2019 • May 1, 2019
This study evaluated mode-of-administration effects in a sample of participants with SCI or TBI for whom interviewer-administered measures may be an especially important option. Adults with SCI or TBI...
KEY FINDING: PROMIS instruments demonstrated measurement equivalence across interviewer- administered and self-administered conditions.