Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 71-80 of 132 results
Spinal Cord Series and Cases, 2021 • February 12, 2021
This qualitative study explored the lived experience of spinal cord injury (SCI) as described by life story interviews with two adults who sustained SCI as children. Four themes relevant to the experi...
KEY FINDING: Adjustment to life with SCI involves a grieving period and the importance of role models in developing perspectives on disability and future aspirations.
The Journal of Spinal Cord Medicine, 2020 • May 1, 2020
The study examined long-term compliance with bladder management among SCI patients in Saudi Arabia, finding that many patients initially discharged on CIC discontinued its use within a few months. Lac...
KEY FINDING: A significant number of patients discharged on CIC stopped using it within 3 months due to lack of accessibility and financial support for catheters.
Journal of Patient-Reported Outcomes, 2021 • May 6, 2021
The study translated and adapted the Arm Activity Measure (ArmA) into Swedish (ArmA-S) and evaluated its psychometric properties in patients with upper limb spasticity. ArmA-S was found to have good f...
KEY FINDING: ArmA-S demonstrated good face and content validity, indicating that it is clear, understandable, and relevant to patients and clinicians.
The Journal of Spinal Cord Medicine, 2019 • January 1, 2019
This qualitative study explored healthcare providers’ perceptions of factors influencing medication adherence for individuals with spinal cord injury and dysfunction (SCI/D). Providers identified micr...
KEY FINDING: Micro-level factors, including medication-related factors like side effects and patient-specific factors such as medication knowledge, were most frequently discussed by providers.
The Journal of Spinal Cord Medicine, 2019 • January 1, 2019
The study evaluated patient pain perception and preferences regarding the order of light touch (LT) and pinprick (PP) sensory testing during the ISNCSCI examination. Results indicated that first-time ...
KEY FINDING: All subjects reported that light touch testing was not painful.
The Journal of Spinal Cord Medicine, 2017 • January 1, 2017
This study examined the perceptions of individuals with SCI regarding holistic care and relational empathy in their healthcare encounters. The study used a mailed survey to collect data from Veterans ...
KEY FINDING: Higher physical and mental health status were independently associated with greater perceptions of holistic care and empathy.
The Journal of Spinal Cord Medicine, 2015 • March 1, 2015
This study evaluated the satisfaction of individuals with tetraplegia following upper extremity reconstructive surgery in Denmark over a 35-year period. The study found overall high satisfaction, espe...
KEY FINDING: Overall satisfaction with upper extremity surgery among individuals with tetraplegia is high, with 76% expressing general satisfaction.
BMC Neurology, 2014 • October 10, 2014
This study aimed to determine the importance of self-management program components for individuals with traumatic SCI and explore their views on program delivery. The results showed that exercise, nut...
KEY FINDING: Exercise, nutrition, pain management, information/education on aging with a SCI, and confidence were rated as 'very important' by the greatest proportion of participants.
Disabil Health J, 2017 • January 1, 2017
This study used photovoice to understand how Veterans with SCI define function, the facilitators and barriers to function, and adaptations to support functioning. The study found that participants def...
KEY FINDING: Participants defined function in terms of 'normalcy,' aspects of daily living, and the ability to be independent.
Systematic Reviews, 2016 • August 22, 2016
This systematic review aims to review the literature on self-management interventions to improve skin care in people with a SCI and to address the key elements that are important in advancing self-man...
KEY FINDING: The systematic review aims to identify active ingredients included in self-management interventions targeting skin care in people with a SCI.