Patient Experience Research

KEY FINDING: Only a small fraction of programs provided an explicit definition of self-management.

KEY FINDING: The web-based self-management program is feasible and acceptable for Canadians with SCI.

KEY FINDING: Patients undergoing outpatient rehabilitation had lower PROMIS-APS and PROMIS-SPS scores than the general Dutch population at both admission and discharge.

KEY FINDING: Participants perceived education to be an ongoing process made up of consecutive phases, each of which had to be overcome before participants felt ready to reappraise their health and well-being.

KEY FINDING: The structure indicator is the proportion of staff with appropriate education and training in self-management principles.

KEY FINDING: The interplay between empowerment and disempowerment emerged as the core theme, permeating participants’ meanings and perceptions, influencing their rehabilitation journey.

KEY FINDING: The study found high completion rates and acceptability of the data collection protocol, with over 98% of care partners completing the study and high compliance rates for daily and monthly surveys.

KEY FINDING: The level of impairment influences patient priorities when considering upper extremity reconstructive surgery.

KEY FINDING: The WeChat applet was found to be helpful and embraced by NGB patients due to its accessibility, flexibility, and intuitive design.

KEY FINDING: A high prevalence of depressive mood was found among people with spinal cord injury, with 84.3% experiencing it.