Social Support Research
Browse the latest research summaries in the field of social support for spinal cord injury patients and caregivers.
Showing 1-10 of 76 results
SCI Thrive: Impact of a peer-led online self-management program
The Journal of Spinal Cord Medicine, 2024 • May 1, 2024
The study evaluated the effectiveness of SCI Thrive, a peer-led online self-management program, for individuals with spinal cord injury (SCI). Results indicated that while there were no significant di...
KEY FINDING: The treatment group had significantly higher scores on CHART occupational subscale (P = .022), but no other differences were found at the end of 6 weeks.
Social disconnectedness and perceived social isolation in persons with spinal cord injury/ dysfunction living in the community: A scoping review
The Journal of Spinal Cord Medicine, 2023 • May 1, 2023
This scoping review aimed to understand the existing literature on social disconnectedness and perceived social isolation (PSI) among adults with spinal cord injury/dysfunction (SCI/D) living in the c...
KEY FINDING: Most studies focused on perceived social isolation (PSI), with fewer addressing social disconnectedness.
The reliability and validity of the TBI‑CareQOL system in four diverse caregiver groups
Journal of Patient-Reported Outcomes, 2023 • January 4, 2023
This report provides data to support the reliability and validity of scores on several HRQOL measures from the TBI-CareQOL measurement system (which was developed specifically for use in caregivers of...
KEY FINDING: Findings support the internal consistency reliability (all alphas > 0.70 with the vast majority being > 0.80 across the different cohorts) of the TBI-CareQOL measures.
The voice of caregivers of children and adolescents with spinal cord injuries: A scoping review
The Journal of Spinal Cord Medicine, 2024 • January 1, 2024
This scoping review aimed to explore the voice of caregivers of children and adolescents with SCI by collating available research and synthesizing how the research has been conducted. The review ident...
KEY FINDING: Research involving caregivers of children with SCI is predominantly conducted in the USA, especially through Shriners Hospitals for Children, limiting representation.
Impact of the cough stimulation system on the care burden and life quality of caregivers of tetraplegics
The Journal of Spinal Cord Medicine, 2023 • January 1, 2023
This study assessed the impact of the cough stimulation system (CSS) on caregiver burden and quality of life for primary family caregivers of individuals with cervical spinal cord injury (SCI). The re...
KEY FINDING: SCI participants showed significant clinical improvements in restoring an effective cough and managing airway secretions with the CSS.
Caregiver burden according to ageing and type of care activity in caregivers of individuals with spinal cord injury
Spinal Cord Series and Cases, 2023 • March 29, 2023
This study investigated the factors affecting caregiver burden among caregivers of individuals with spinal cord injury (SCI), with a focus on caregiver age and the type of care activities provided. Th...
KEY FINDING: Caregiver burden was significantly higher among older caregivers, spouses/parents, those sleeping less than 8 hours, those with underlying diseases, and those experiencing pain.
Rehabilitation Professionals’ Perspectives on Psychosocial Needs of Family Caregivers of Persons with Spinal Cord Injury: A Qualitative Study from India
Korean J Fam Med, 2023 • March 1, 2023
This qualitative study explores the psychosocial needs of family caregivers (FCGs) of persons with spinal cord injuries (PwSCI) from the perspective of rehabilitation professionals in India. The study...
KEY FINDING: The study identified nine key need themes: informational, psychological, personal care, financial, social support, welfare, vocational, telemedicine, and referral.
Labor market costs for long‑term family caregivers: the situation of caregivers of persons with spinal cord injury in Switzerland
BMC Health Services Research, 2023 • June 26, 2023
This study investigates the labor market costs for long-term family caregivers of persons with spinal cord injury (SCI) in Switzerland. It analyzes the reduction in working hours and associated income...
KEY FINDING: Family caregivers reduced their working hours by about 23% (8.4 h per week), resulting in a monetary loss of CHF 970 per month.
Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities
Frontiers in Public Health, 2023 • July 26, 2023
This study investigated the influence of caregiver preparedness on caregiver burden, depression, and quality of life (QoL) in caregivers of individuals with disabilities, using a multicenter cross-sec...
KEY FINDING: Higher caregiver preparedness is associated with less caregiver burden.
The Dosing of Mobile-Based Just-in-Time Adaptive Self-Management Prompts for Caregivers: Preliminary Findings From a Pilot Microrandomized Study
JMIR Formative Research, 2023 • September 14, 2023
This study provides preliminary evidence to support the effectiveness of self-management JITAIs in improving caregiver HRQOL. The findings suggest a dose-response relationship where a higher dosage of...
KEY FINDING: A positive dose-response relationship was found between the number of JITAI messages and improvements in caregiver strain, anxiety, and depression.