Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 21-30 of 132 results
Top Spinal Cord Inj Rehabil, 2024 • January 1, 2024
The co-design process, including people with SCI and general practitioners, facilitated a shared understanding of problems and identification of needs. The SCI-HMT is a freely accessible resource supp...
KEY FINDING: The SCI-HMT was developed based on participatory research with data synthesis from multiple sources, and five priority health maintenance issues were covered.
Front. Rehabil. Sci., 2024 • February 21, 2024
This paper presents a method for meaningful transdisciplinary stakeholder engagement in rehabilitation technology development that can extended to other projects. Alongside a worked example, we offer ...
KEY FINDING: Eighty percent of issues were rated to be of moderate to high significance, 83% were rated as being feasible to address, and 75% were rated as addressable using existing project resources.
Healthcare, 2024 • February 23, 2024
The study aims to address the complex, fragmented, and multi-faceted evaluation of PwSCI experiences regarding transitions in care, health, function, and quality of life. A staged protocol involving P...
KEY FINDING: Stakeholders chose to co-develop one tool to be used by persons with SCI to monitor their transition experiences across settings and care providers.
Indian Journal of Palliative Care, 2024 • January 16, 2024
The study evaluated the satisfaction of beneficiaries receiving primary palliative care (PC) services in Kerala, India, through a cross-sectional survey of 450 patients. It found that 69.1% of benefic...
KEY FINDING: The overall satisfaction with the Kerala State Primary PC Programme was found to be high at about 69%.
Front. Rehabil. Sci., 2024 • April 10, 2024
Co-production research, emphasizing equality and reciprocity, is becoming more common in health research due to increasing calls for epistemic and health justice. However, it can be challenging in pra...
KEY FINDING: Power imbalances and structural inequities hinder power sharing in co-production research. Addressing this involves researchers being reflective of their status and elevating lived experience perspectives.
PLoS ONE, 2024 • April 29, 2024
The study aimed to explore seriously injured rugby players’ perspectives on PPI in pre-clinical spinal cord research with specific objectives to (1) establish participants’ knowledge/experience of PPI...
KEY FINDING: People affected by spinal cord injury desire further involvement in pre-clinical research through dialogue and contact with researchers.
Frontiers in Rehabilitation Sciences, 2024 • April 29, 2024
This study qualitatively examined peer interactions within an online self-management program for individuals with spinal cord injury (SCI). The analysis revealed themes of resource sharing, skill-buil...
KEY FINDING: Participants engaged in skill-building, resource sharing, and problem-solving within the online forum.
American Journal of Physical Medicine & Rehabilitation, 2025 • February 1, 2025
This retrospective cohort study examined the association between the level of consent to the Rick Hansen Spinal Cord Injury Registry (RHSCIR) and patient outcomes after traumatic spinal cord injury (T...
KEY FINDING: Participants who declined community follow-up interviews but accepted minimal data collection had significantly longer acute length of stay compared to those who provided full consent.
OTJR: Occupational Therapy Journal of Research, 2025 • January 1, 2024
This study sought to understand the experiences of participants who completed the SCISM program through qualitative analysis of semi-structured interviews after program completion. Participant’s respo...
KEY FINDING: Participants felt that the SCISM Program provided them with a sense of community that may be lacking in their physical environment or via social media.
Health Expectations, 2024 • June 19, 2024
This study aimed to develop key principles for PPI in preclinical spinal cord research to support researchers in conducting evidence‐informed PPI. Using a modified Delphi method, consensus was reached...
KEY FINDING: Consensus (> 75% agreement) was reached for a total of 27 principles, with 13 rated as essential and 14 rated as desirable.