Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 31-40 of 132 results
Front. Rehabil. Sci., 2024 • July 16, 2024
The project successfully co-developed and disseminated a series of nine educational podcasts and related EATs, titled “The Bare Bones Podcast Series,” to educate individuals with SCI/D about bone heal...
KEY FINDING: Nine podcast episodes and related Educational Action Planning Tools (EATs) were co-developed with PLEX partners, reviewers, and expert panel members.
Health Expectations, 2024 • January 1, 2024
This study explored the perspectives of preclinical researchers and clinicians on PPI in preclinical spinal cord research, noting its potential benefits for research and researchers. Participants iden...
KEY FINDING: Participants believed that individuals affected by SCI have a right to be involved in research concerning their condition.
DIGITAL HEALTH, 2024 • July 9, 2024
The study evaluated the Parkwood VIP4SCI platform, a virtual e-health solution designed to improve self-management skills for individuals with spinal cord injury (SCI) during care transitions. Results...
KEY FINDING: The VIP4SCI platform was seen as usable and feasible by both patients and clinicians, with platform satisfaction scores ranging from +0.9 to +2.5 on a −3 to +3 scale.
Healthcare, 2024 • August 6, 2024
This cross-sectional study investigated the relationship between perceived relational empathy, resilience, and various clinical and demographic variables in adult SCI patients at discharge from intens...
KEY FINDING: Perceived relational empathy was positively associated with resilience, suggesting that patients who felt more understood by their doctors exhibited greater resilience.
BMC Musculoskeletal Disorders, 2024 • September 23, 2024
This study validated the structural validity of the BARQ-R using Rasch analysis in community-dwelling adults with and without musculoskeletal pain in the US, and validated previous Rasch analysis resu...
KEY FINDING: The 9-item Rasch-based BARQ-R had no misfitting items after rescoring 1 item and deleting 3 items in community-dwelling adults with and without musculoskeletal pain.
Front. Rehabil. Sci., 2024 • November 20, 2024
This paper describes a co-design process used to develop personalized mobility programming (PMP) for individuals with mobility impairments, using an adaptive intervention design approach and integrate...
KEY FINDING: The co-design process led to the development of four personalized mobility programs: cognitive cardio class, functional strength class, mobility circuit group, and an open gym.
Front. Rehabil. Sci., 2024 • December 19, 2024
This study explores the challenges experienced by nursing staff in their effort to improve patient participation in rehabilitation within a spinal cord injury center. The findings highlight difficulti...
KEY FINDING: Nursing staff found it difficult to truly listen to patients' perspectives, struggling to set aside other tasks and be fully present in conversations.
Archives of Rehabilitation Research and Clinical Translation, 2024 • January 1, 2024
This study examined nonresponse bias in inpatient rehabilitation facilities (IRFs) by comparing routine IRF survey data with research survey data from patients with neurologic conditions. The findings...
KEY FINDING: IRF Survey respondents had higher cognitive function than nonrespondents; patients with spinal cord injuries were more likely to complete the IRF Survey than other patients.
Frontiers in Rehabilitation Sciences, 2025 • January 6, 2025
This Research Topic showcases current practices and implementation of co-design in rehabilitation research and service delivery, and to encourage further reflection on how the field can move forward i...
KEY FINDING: Communication, consistency and connection were key factors that could enhance engagement in pediatric telerehabilitation and reduce barriers to care.
Journal of Rehabilitation Medicine, 2025 • February 25, 2025
This study is the first in Malaysia to successfully employ a path analysis model in investigating HCU and HCSS among individuals with SCI. First, the HCU was predicted by health problems, which in tur...
KEY FINDING: Health problems predicted healthcare utilization, while activity limitation and participation restriction predicted healthcare services satisfaction.