Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 11-20 of 132 results
JMIR Formative Research, 2023 • September 14, 2023
This study provides preliminary evidence to support the effectiveness of self-management JITAIs in improving caregiver HRQOL. The findings suggest a dose-response relationship where a higher dosage of...
KEY FINDING: A positive dose-response relationship was found between the number of JITAI messages and improvements in caregiver strain, anxiety, and depression.
Journal of Craniovertebral Junction and Spine, 2023 • September 18, 2023
This study analyzed Twitter and Instagram usage by patients with SCI to identify major themes expressed by patients regarding their experience. Patients most often shared images of their wheelchairs a...
KEY FINDING: The most common theme on Instagram was spreading positivity, while on Twitter, it was the appearance of a wheelchair.
MDM Policy & Practice, 2023 • July 30, 2023
This study evaluated a newly developed online patient decision aid (PtDA) for individuals with cervical spinal cord injury considering upper extremity reconstructive surgery. The PtDA improved partici...
KEY FINDING: Participants had a 20% increase in knowledge after using the PtDA.
Frontiers in Neurology, 2023 • October 12, 2023
This study used cluster analysis to identify five clinically similar subgroups of tSCI patients based on demographics and injury characteristics at baseline. These subgroups showed statistically signi...
KEY FINDING: The study identified five distinct subgroups of tSCI patients based on baseline variables such as age, BMI, injury severity (AIS grade), primary location of injury (PLI), and baseline FIM motor score.
African Journal of Primary Health Care & Family Medicine, 2023 • October 26, 2023
This study developed a pain self-management intervention framework for PWSCI using a modified e-Delphi method with a panel of experts. The framework includes 56 interventions spanning medical, psychol...
KEY FINDING: The final pain self-management framework consists of 56 interventions, encompassing medical, psychological, therapeutic, and social approaches.
The Journal of Spinal Cord Medicine, 2024 • January 1, 2024
This study explored the knowledge and awareness of bone loss and fracture risk among adults with SCI. It revealed that a significant portion of participants were unfamiliar with BMD and felt their kno...
KEY FINDING: Approximately 20% of participants had never heard of bone mineral density (BMD).
Neurotrauma Reports, 2023 • January 1, 2023
This study investigated the perspectives of persons with spinal cord injury (SCI) on data sharing, including perceived risks and benefits, and willingness to share different types of data. The study f...
KEY FINDING: The majority of participants felt that the benefits of data sharing outweighed the negatives.
Top Spinal Cord Inj Rehabil, 2023 • July 1, 2023
The study aimed to determine if assessment of urinary symptoms in people with neurogenic lower urinary tract dysfunction (NLUTD) should depend on bladder management method (indwelling catheter (IDC), ...
KEY FINDING: Ten urinary symptoms are independent of bladder management, forming a 'core' set of NLUTD urinary symptoms.
Front. Rehabil. Sci., 2023 • December 12, 2023
This study explores the challenges in implementing patient participation in a rehabilitation unit, despite new insights from an action research project. It identifies competing discourses – biomedical...
KEY FINDING: Nurses found it difficult to incorporate patient perspectives due to organizational structures that prioritize task-based routines.
Top Spinal Cord Inj Rehabil, 2023 • January 1, 2023
This qualitative study examined how physical therapists communicate standing and walking ability information to SCI inpatients and explored patient preferences for receiving such feedback. The study r...
KEY FINDING: Participants showed varied preferences for the format, frequency, and type of feedback regarding their standing and walking ability during inpatient rehabilitation.