Browse the latest research summaries in the field of patient experience for spinal cord injury patients and caregivers.
Showing 51-60 of 132 results
The Journal of Spinal Cord Medicine, 2023 • January 1, 2023
This study evaluated eHealth and general health literacy levels among individuals with SCI identified relationships between eHealth literacy, general health literacy, and various sociodemographic fact...
KEY FINDING: Participants demonstrated moderate levels of eHealth literacy (31.6 out of 40) and general health literacy (17.6 out of 20).
Occupational Therapy International, 2022 • March 15, 2022
This research explored how persons with SCI and their primary caregivers execute self-management strategies in daily community life and then mapped these strategies to a leading, preexisting self-mana...
KEY FINDING: Participants developed and followed consistent routines and habits to manage their medical health complications and facilitate participation in daily activities.
Top Spinal Cord Inj Rehabil, 2022 • July 1, 2022
This study explored the expectations of individuals with SCI regarding a mobile app designed for self-management of secondary conditions. Understanding these expectations is vital for promoting app ad...
KEY FINDING: Participants expected the app to improve psychological, physical, and behavioral health outcomes, including reducing anxiety and promoting physical activity.
Arch Phys Med Rehabil, 2022 • November 1, 2022
This study describes the process of adapting an evidence-based patient engagement intervention, E-MR, for inpatient SCI/D rehabilitation using an implementation science framework. The study applied th...
KEY FINDING: Identified factors influencing patient engagement in SCI/D rehabilitation, such as therapist training and patient adjustment to new disabilities.
Digital Health, 2022 • January 1, 2022
This study evaluated the mid-term impacts of a novel telerehabilitation service during the COVID-19 pandemic, focusing on patient experience, health outcomes, and health service utilization. The servi...
KEY FINDING: Callers were generally satisfied with the telerehabilitation service and found it usable, corroborating pre-pandemic literature.
Spinal Cord, 2022 • July 7, 2022
This study evaluated the applicability of the AO Spine PROST for individuals with motor-complete SCI through cognitive interviews. The goal was to identify potential adjustments to enhance the tool's ...
KEY FINDING: Participants generally found the AO Spine PROST to be comprehensive, not offensive, relevant, and largely complete.
African Journal of Disability, 2022 • July 27, 2022
The study explores the experiences of spinal cord injury (SCI) patients at a Namibian rehabilitation unit, revealing both negative and positive aspects of their journey. Negative experiences include e...
KEY FINDING: Participants experienced negative emotions such as anger, stress, frustration, and sadness, leading to depression after sustaining a spinal cord injury.
The Journal of Spinal Cord Medicine, 2020 • January 1, 2020
The study aimed to identify barriers to healthcare access and determinants of satisfaction with healthcare services for people with chronic spinal cord injury (SCI). The results showed that transporta...
KEY FINDING: Elderly individuals rated the availability and quality of healthcare higher than younger individuals.
The Journal of Spinal Cord Medicine, 2020 • January 1, 2020
This review identified and evaluated patient-reported outcome measures (PROMs) suitable for assessing the impact of spasticity following spinal cord damage (SCD). Condition-specific (PRISM, SCI-SET), ...
KEY FINDING: Two spasticity-specific measures (PRISM and SCI-SET), five generic measures, and four preference-based measures were identified for assessing HRQoL in persons with spasticity following SCD.
The Journal of Spinal Cord Medicine, 2020 • January 1, 2020
The study assessed the feasibility of a self-management mobile app for individuals with SCI during inpatient rehabilitation and after community discharge. Feasibility indicators were strong during inp...
KEY FINDING: Recruitment targets were exceeded, and the app was usable for individuals with varying levels of injury during inpatient rehabilitation.