Patient Experience Research

KEY FINDING: CIC is the preferred method for bladder emptying, especially among individuals with thoracic and lumbar SCI.

KEY FINDING: General online searches for spinal cord injury treatment yield very few articles that mention upper extremity surgery.

KEY FINDING: Clinicians identified that emotional health and social participation were the most important areas to assess using SCI-QOL during inpatient care.

KEY FINDING: The study found that ‘Your injury’ (personalized, injury-specific information) was ranked as the most important theme for online educational resources.

KEY FINDING: Participants expressed concerns about bone health and fractures, which limited activities and participation for some.

KEY FINDING: The study found that it is possible to work with individuals with DCM to create word clouds for the AO Spine RECODE-DCM study.

KEY FINDING: All items on the questionnaires were endorsed by more than 10% of the participants, suggesting that the items represent recognizable urinary symptoms.

KEY FINDING: Learning self-care skills was mainly achieved through experience, challenging oneself, and utilizing opportunities provided by the rehabilitation team.

KEY FINDING: The HL level was inadequate in 32.5%, problematic-limited in 40.3%, sufficient in 19.5%, and excellent in 7.8% of the patients.

KEY FINDING: Older age and higher lesion level indicated more severe physical function impairments.